In this talk, I centre an ESRC-funded arts-informed co-produced research project – the Living Life to the Fullest -Project – that has brought together a Co-Researcher Collective of disabled young people living with life-limiting and life-threatening impairments (https://livinglifetothefullest.org/the-co-researcher-collective/). The aim of our project has been to make visible the lives, desires, hopes and contributions of disabled young people with Life Limiting/Life Threatening Impairments (LL/LTIs) to wider society (https://livinglifetothefullesttoolkit.com). We explore disablism and ableism in disability life, dying, death and after death and co-produce knowledge across the academic fields of palliative care, biomedicine, disability studies, childhood studies and community psychology. Our aim is also to promote new affirmative theories in the social sciences of life, death, disability and the human, and to re(present) the lives and contributions of disabled young people with LL/LTIs through Arts-Informed Methods (AIMs).

Katherine Runswick-Cole is Chair in Education in The School of Education at the University of Sheffield, UK.  She has published extensively in the field of critical disability studies.  Recent publications include: Goodley, D., Lawthom, R., Liddiard, K., and Runswick-Cole, K. (2019) ‘Provocations for Critical Disability Studies‘, Disability and Society.

On-line at: https://www.tandfonline.com/doi/full/10.1080/09687599.2019.1566889